(PDF kindle) Beyond the Pale by Emily Urquhart – TXT, Kindle eBook and Epub Read

Emily Urquhart ß 5 characters

Drew the awestruck hospital staff to her sideA journalist and folklore scholar accustomed to processing the world through other people's stories Emily is drawn to understanding her child's difference by researching the cultural beliefs associated with albinism worldwide What she finds on her journey vacillates between beauty and darkness She discovers that Noah's birth story is believed to be the first record of a baby born with albinism and that the Kuna people in Panama revere members of their society with albinism seeing them as defenders of the moon in the night sky She attends a gathering of people with albinism in St Louis and interviews geneticists social scientists novelists and folklorists in Canada England and the US But when she uncovers information about grue. A wonderful read exploring the many cultural beliefs and understandings surrounding albinism This is a non fiction book focusing on a subject in which Emily Uruhart has poured her heart and soul Having given birth to her daughter Sadie Emily uickly discovered there was something that set her daughter apart from the rest she had albinism Being a passionate folklorist Emily took it upon herself to discover everything there is to know about albinism from all over the planetWhat I loved about this book was the unfaltering determination from Emily to unearth the secrets of her family so that she could one day share them with Sadie You see Emily and her husband come to terms with the fact that Sadie will always be impaired in some way or another but they combat that with pure courageousness and open minds It was a truly eye opening read and I would highly recommend to all I had never read anything to do with albinism before and this one definitely taught me a lot

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Beyond the Pale

Some attacks on people with albinism in Tanzania rooted in witchcraft she feels compelled to travel to East Africa her sun shy toddler in tow in an effort to understand these human rights violations Upon her return to Canada she discovers a family photograph from the past that might illuminate her daughter’s present While navigating new territory as a first time parent of a child with a disability Emily embarks on a three year journey across North America and Africa to discover how we explain human differences not through scientific facts or statistics but through a system of cultural beliefs Part parenting memoir part cultural critiue and part travelogue Beyond the Pale as the title suggests takes the reader into dark and unknown territory in the search for enlightenme. Albinism is a rare genetic condition where pigment fails to form in a person s skin hair and eyes Those with albinism suffer from poor vision and sensitivity to the sun often developing skin cancer When Emily Uruhart gave birth to a daughter with albinism in 2010 her life took an unexpected turn Living in Canada Uruhart set out determined to learn everything she could about the condition and the implications for her daughter s health and wellbeing in the years to come Beyond the Pale is Uruhart s memoir of this period of discovery and as the blurb says it is part memoir part cultural critiue and part genetic travelogueUruhart consulted a myriad health professions and attended the NOAH National Organization for Albinism and Hypopigmentation conference in the USA She travelled to Africa to meet children with albinism and hear about their traumatic experiences first handUruhart is a folklore scholar and journalist and I was very interested in reading about the superstition and folklore surrounding albinism in different cultures and across time Unfortunately there just wasn t enough and given this was the primary reason for my reading I was deeply disappointedThe last section of the memoir covered Uruhart s efforts to map her family tree and trace the albinism gene back through the generations She shares all the ins and outs of her family tree and I uickly lost interest in this geneology deep diveIn hindsight I think I d have been better off spending 30 minutes learning about albinism online rather than reading this specialised memoir It really wasn t for meRecommended reading for memoir lovers parents who have a child with albinism those with an interest in geneology In Tanzania 1 in every 1429 babies born have albinism and the population believes those with albinism have magical powers As a conseuence those with albinism are often hunted and their body parts are sought after for use by witch doctors to heal the sick Tragically it is sometimes the family members who offer their children to the albino hunters in return for money Not something Uruhart s beautiful daughter Sadie will ever have to worry about

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The story begins on St Stephen's Day 2010 in St John's Newfoundland when the author gives birth to a baby girl named Sadie Jane who has a shock of snow white hair News of the child's icy locks travels across the hospital and physicians and nurses from all wards visit the unusually beautiful newborn as she lies sleeping in her plastic bassinet The maternity floor janitor however feels something is amiss Her eyes wide incredulous and panicky the janitor asks Is she an albino The idea is immediately dismissed but after three months of medical testing Sadie is diagnosed with albinism a rare genetic condition where pigment fails to form in the skin hair and eyes She is visually impaired and faces a lifetime avoiding the sun She will always have the otherworldly appearance that. This has a massive personal connection for me Will chat about it in my August wrap up A wonderful read


10 thoughts on “Beyond the Pale

  1. says:

    I am fairly conflicted about this book and I have mostly myself to blame for that I did not really read the description before reuesting it and going mainly off the title of the book I expected the folklore part of this bo

  2. says:

    This has a massive personal connection for me Will chat about it in my August wrap up A wonderful read

  3. says:

    I'm giving this book a 35 rating which seems a little harsh in my head but I think it makes sense This is uite a

  4. says:

    In December 2010 the author’s first child Sadie was born with white hair It took weeks to confirm that Sadie had albinism a genetic condition associated with extreme light sensitivity and poor eyesight A Canadian folklorist Uruhart is well placed to trace the legends that have arisen about albinos through time and across the world ranging from the Dead Sea Scroll story of Noah being born with blinding white skin and hair to the

  5. says:

    A wonderful read exploring the many cultural beliefs and understandings surrounding albinism This is a non fiction book focusing on a

  6. says:

    I have been dithering on posting these notes I read books and then I say what I think about them The notes are mostly for myself but the GR model means saying things in public If I want to use the site that's the trade off reuired At the sam

  7. says:

    Given that I am Canadian it is ironic that I learned about this extremely well written non fiction Canadian book from the very British Jen Campbell author poet and Booktuber extraordinaire Thank you JenUruhart's moving and informative book recounts her adjustment after her first child a daughter is born with albinism The book is part memoir part travelogue part journalistic investigation and part folkloric s

  8. says:

    Read this review and on my blogI feel like this year is the happiest I've felt with my reading habits for the longest time When you step into book blogging it feels as though you must read what everyone else is reading not because anyone else tells you that but because naturally you want to join in when other bloggers are really excited abou

  9. says:

    Albinism is a rare genetic condition where pigment fails to form in a person's skin hair and eyes Those with albinism suffer from poor vision and sensitivity to the sun often developing skin cancer When Emily Uruhart gave birth to a daughter with albinism in 2010 her life took an unexpected turn Living in Canada Uruhart set out de

  10. says:

    Such an interesting book I'm glad I finally picked it up as I learned so much about albinism and how it affects people around the world I loved how Uruhart tied her research into folklore it really does show how fiction and myths can

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